Educational Course for Healthcare Professionals
Dr. Lapp and Leonard Jason PhD have co-authored an educational course with the Center for Disease Control and Prevention and the CFIDS Association of America. Chronic Fatigue Syndrome: A Diagnostic & Management Challenge is available online as a 2-hour CME course designed to provide an overview of chronic fatigue syndrome. The goal of this course is to assist health care professionals in detecting, diagnosing, and managing this complicated disorder. http://www.cdc.gov/cfs/education/diagnosis/index.html
We are pleased to share with you several websites that we have found helpful.
Internet information may not be reviewed nor censured, so the authenticity is always questionable. Extremely reliable sites are marked by an asterix (*) below.
CFS Facts (CDC)*
This site is an excellent source of general information on CFS as well as programs supported by the Center for Disease Control and Prevention. The CDC monitors and studies diseases that occur in the USA.
National Library of Medicine*
This link will connect you to the National Library of Medicine, and a program to look up scientific articles at no charge.
CFS Facts (NLM)*
This site is a compilation of articles on CFS, summaries, and interactive tutorials, provided by the National Library of Medicine in Bethesda, MD.
FM Facts (NLM)*
This site is a compilation of articles on FM, summaries, and interactive tutorials, provided by the National Library of Medicine in Bethesda, MD.
National Institute of Arthritis & Musculoskeletal & Skin Diseases*
The NIAMS is a division (or institute) of the NIH, and is responsible for studies on FM.
Centers for Disease Control and Prevention (CDC)*
The CDC is responsible for monitoring and studying diseases that occur in the USA.
US Social Security Administration*
CFIDS Association of America
The CAA is America’s largest and most reliable patient advocacy organization. The website provides current information, links, and a access to articles previously published by the organization.
Self-Study Course for Professionals (CME)
This course was developed by the CFIDS Association, the CDC, and HRSA to provide reliable education on the diagnosis and initial management of CFS/ME. Dr. Lapp was a co-author of the project, which provides CME/CE credit for physicians and medical professionals.
A Quick Start Guide & CFS/ME Treatment
Dr. Lapp has developed a short turnkey source for doctors and other providers who need a one-stop source for diagnosis and initial management of CFS. Providers can print out all information and forms necessary for the first three office visits.
National Fibromyalgia Partnership
The NFP is the largest non-profit, membership organization for fibromyalgia (FM) in the United States. Based in the Washington, DC, area,
International Association for CFS/ME
The IACFS/ME is an international organization of professionals interested in studying both CFS and FM. The IACFS presents annual update meetings for patients, and a biennial international symposium.
CFIDS Self Help Site
Dr. Bruce Campbell was an educator with the Stanford chronic illness project when he was struck with CFS/ME in 1997. By following a Stepwise Approach, journaling, and slowly but steadily increasing his activity level, Campbell was able to recover from his illness within 5 years. He has now produced a book (with a forward written by Dr. Lapp) and supervises a 6 week internet-based self improvement course. This course is highly recommended! For details go to www.cfidsselfhelp.org.
CFS/FM Self Help Site
Not everyone can attend the Hunter-Hopkins Center. This website was designed by Dr. Lapp and Dr. Campbell to provide individualized, step-by-step online program for managing your CFS/ME and FM. www.treatcfsfm.org.
ANZMES, the website of the Associated New Zealand ME Society, serving New Zealanders with Myalgic Encephalopathy/Chronic Fatigue Syndrome.
Allison Hunter Memorial Foundation
Allison Hunter Memorial Foundation supports biomedical research and informational seminars for providers and patients in Austrailia.
CFS in Kids
Privately sponsored by the Nemours Foundation, this site provides tips on coping with chronic illness in kids, specifically CFS/ME and FM.
Gulf War Resource Center (non-governmental association)
The National Gulf War Resource Center is an international coalition of advocates and organizations providing a resource for information, support, and referrals for all those concerned with the complexities of Persian Gulf War issues, especially Gulf War illnesses.
A North Carolina website that promotes awareness of Multiple Chemical Sensitivities, and provides exceptional information and resources.
Food Allergies and Anaphylaxis Network
This site promotes awareness of food allergies, and provides resources for dealing with this difficult problem.
NC Health Info (UNC Health Sciences Library)
This comprehensive site provides links for health topics, drug information and a medical encyclopedia. North Carolina residents can also search for health care providers, facilities, special programs, and services.
This commercial medical education site provides fairly reliable information on breaking topics in CFS/ME and FM, as well as essentials, resources, and an archive of past articles.
CFS Knowledge Center
This site was created in 2008 by Dr. Herb Hyman (a longstanding advocate of CFS/ME) and Dan Moricoli (a PWC), to provide a reliable, helpful resource center for those with CFS/ME.
This AMA-sponsored commercial site provides trustworthy, credible, and timely health information.
This site is sponsored by Hunter-Hopkins Center as a repository for information on various treatment modalities. The site is currently under construction, but a few items are currently posted for your interest. Click on www.cfstreatment.info to visit this new site!
Dr. Leonard Jason and the DePaul University CFS Research Team
Univ. of Washington Cooperative Research Center (Dr. Dedra Buchwald)
New Jersey CFS & FM Center
Pain & Fatigue Center (Drs. Ben Natelson & Gudrun Lange)
Dr. Ben Natelson has moved his well-known practice of CFS/ME and FM to Beth Israel Medical Center in New York City. For more details visit his website, http://www.painandfatigue.com
Nightingale Foundation (Dr. Byron Hyde, Ottawa, Canada)
Dedicated to Fibromyalgia and Chronic Myofascial Pain, Dr. Starlanyl provides information on her own excellent books, as well as a wide variety of information and resources. This is an award-winning site that you will want to visit!
Starlanyl’s FMS and CMP Website
Alison Hunter Memorial Foundation (AHMF, Australia)
This foundation was founded by the family and friends of Alison Hunter to provide information and advocacy to persons with CFS/ME, and to promote international research collaboration. (The Hunter-Hopkins Center was also named in memory of Alison).
Canadian National ME/FM Network
Non-profit organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome (FMS)
Oregon Fibromyalgia Foundation
A volunteer organization that educates both patients and professionals about FM. Most notable are exercise videos by Sharon Clark, Janice Hoffman, and R. Bennett, MD, on stretching, aerobic exercise and strengthening in persons with FM.
KCP Physical Therapy
Our local Physical Therapy resource for persons with CFS/ME/FM. Joy Pfuhl and Joyce Kight are particularly skilled at dealing with the mechanical problems caused by CFS/ME/FM.
Elements Therapeutic Massage Southpark
Mark Little invites you to experience the rejuvenating benefits of therapeutic massage today and discover the positive effect it can have on your body and your well-being.
CFS/ME Aktuel by Regina Clos
CFS/ME information in German. http://www.cfs-aktuell.de
Charlotte’s CFS/FM Support Group
Resource for indigent patients seeking reduced or free meds
ImmuneSupport.com / Pro Health
Resource for information and supplements (commercial). Billed as the world’s largest site for CFs and FM with over five million annual visitors and over 6000 articles·
Wellness Books (commercial)
A division of Amazon.com. This link will take you directly to books about CFS/ME/FM.
Hemispherx Biopharma (commercial)
Hemispherx produces the drug Ampligen, which is currently being studied for the treatment of CFS/ME.