9th International IACFS/ME Conference

April 21, 2011 / Charles W. Lapp, MD / News

Dr. Dan Peterson and philanthropist Annette Whittemore hosted the 9th International IACFS/ME Clinical and Research Conference March 12-15, 2009. Meetings were held at the Peppermill Resort in Reno, Nevada, just blocks from the future Whittemore Peterson Institute for Neuro-Immune Diseases. Click here for Dr. Lapp’s summary and comments. A summary by Dr. Ros Vallings (New Zealand) […]

CFIDS Association, CFS

Ampligen Study Is Still Recruiting

April 21, 2011 / Charles W. Lapp, MD / News

Calling For Patients: Ampligen Study Is Still Recruiting Hunter-Hopkins Center is one of two sites in the USA currently participating in an open label study of Ampligen. Persons with CFS may qualify to receive Ampligen therapy. Details are available on the US government Clinical Trials website at: http://www.clinicaltrials.gov/ct2/show/NCT00215813?term=00215813&rank=1 The Hunter-Hopkins program is described at https://drlapp.com/research/ […]

Ampligen, clinical trial

CFIDS Association Webinars

April 20, 2011 / Charles W. Lapp, MD / News

The CFIDS Association of America has published several webinars on CFS-related topics. On May 20th Dr. Lapp hosted a webinar entitled “Treatment of CFS and FM: The Stepwise Approach.” This is an update of our ever-popular treatment approach and is highly recommended for all Persons with CFS/FM, but is also an excellent review for persons […]

CFIDS

XMRV & AMPLIGEN

April 20, 2011 / Charles W. Lapp, MD / News

A Report from the 9th Hemispherx Biopharma Investigators Meeting March 3-6, 2011 Gene Sequencing in Persons with CFS XMRV Subset Analysis and Ampligen Treatment What Is Ampligen? Persons who are interested in signing up for the newsletter should make a request by email .

Ampligen

The Hunter-Hopkins name derives from two individuals who were memorialized because of the invaluable lessons they taught to Dr. Lapp.

Linda Hopkins presented to the emergency room complaining that she could not breath when she nodded off to sleep. As a result she had not slept in weeks. Other physicians had discounted her story as impossible, but Linda and her mother convinced Dr. Lapp to look into it further. Linda was hospitalized and monitored overnight. Sure enough, as soon as she nodded off, Linda went into respiratory arrest – a very severe form of sleep apnea now known as “Ondine’s Curse.” Once the problem was identified, Linda was fitted with a respirator to be used while sleeping. Lesson learned: listen to the patient.

Allison Hunter was diagnosed with Chronic Fatigue Syndrome, but lived in Australia, where the providers of socialized medicine ‘did not believe’ in the diagnosis. As a result she was misnamed a malingerer, hysterical, or Munchhausen – a term reserved for individuals who purposely pretend to be sick. When Alli developed convulsions they were attributed to this ‘phantom illness’ and went untreated. As a result, she died during a grand mal seizure. Lessons learned: (1) diligently look into all complaints and don’t discount them, and (2) don’t trust socialized medicine.

Allison’s parents went on to found the Allison Hunter Memorial Foundation, which has promoted CFS throughout the Pacific Basin and provides superb seminars for practitioners to learn more about CFS and FM.

So we have admired and memorialized these two young women who taught us much about the importance of diligence and listening to the patient.

Hunter-Hopkins Center, PLLC

9th International IACFS/ME Conference

Ampligen Study Is Still Recruiting

CFIDS Association Webinars

XMRV & AMPLIGEN

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