Q: Are there any reliable treatments for insomnia? A: Most experts on ME/CFS agree that sleep disruption is the one symptoms that should be addressed first. Sleep allows the tired achy muscles to recover; and lack of sleep increases pain and fatigue. There are many ways to approach insomnia, starting with good sleep habits, especially […]
Q: I wake up each morning feeling tired, even though I have slept. Would a sleep study be useful? A: There are at least four core symptoms in ME/CFS: pain, cognitive dysfunction, fatigue or post-exertional malaise, and non-restorative sleep. Thus, awakening unrefreshed is one of the cardinal symptoms of ME/CFS, and one of the last […]
Q: Do I have to live the rest of my life like this? A: ME/CFS is considered a chronic illness, but longitudinal studies suggest that 17-64% of adult PWCs improve, less than 10% fully recover. The improvement rate is even better for adolescents with ME/CFS. The current standard of therapy is to treat sleep and […]
Q: Will it help me to eliminate gluten and milk? A: Many PWCs report intolerance to both gluten (wheat products, barley, and rye) as well as dairy products. These intolerances are rarely caused by true allergies to gluten (celiac disease or sprue) or dairy (milk protein allergy). Researchers in Belgium have also suggested that many […]
dairy, food, food intoelrance, food sensitivity, glujten, milkQ: What’s this gene defect in folic acid metabolism all about (the MTHFR gene mutation), and should I be tested? Does insurance cover that test? A: MTHFR (or methylenetetrahydofolate reductase) is an enzyme required to convert folate to methionine, which is then used in the production of necessary amino acids and other compounds. When MTHFR […]
This Month’s Contents Immunomodulators Creatine May Improve Muscle Function Checking the Cost of Medications Getting Some Help At Home Housekeeping Issues Emails under the new HIPAA Bring medications with you to the office Confirm your appointment when you get a “reminder call” The Use of Immunomodulators in CFS/ME/FM A subset of individuals with CFS/ME/FM experience […]
Ampligen, CFS, Coping with CFS/ME/FM, Dr. Lapp, Fibromyalgia, Immunomodulators, ME LetterQ: Maureen C wrote, “My husband and I are fortunate to be able to live wherever we would like. Given my medical situation, where is the best location for me to live?” A: There is not one best place to live in general, because everyone has different needs and desires. Some prefer cold climates and […]
Many PWCs have experienced improvement of symptoms following antibiotic treatment for other conditions. The natural questions then are why? And should I continue to take antibiotics? The first answer is simple. Antibiotics may “work” in more than one way. Yes, they might be treating some hidden infection in the body. But antibiotics have other ameliorating […]
On a regular basis PWCs return to me with a new diagnosis of Lyme Disease. My main concern in such a situation is whether the diagnosis is accurate and treatment appropriate. Lyme Disease can be a trigger for CFS/ME just as can EBV, HHV6, and other infections [Steere AC, JAMA 1993]. That’s why we request […]
IACFS International Conference Summary 11th International IACFS/ME Conference Parc 55 Wyndham Union Square Hotel San Francisco CA March 20-23, 2014 The theme for this biennial IACFS conference was “Translating Science into Clinical Care,” which implies that most papers would address treatments and management schemes aimed at improving the care of persons with CFS/ME and FM. […]
IACFS Conference